Patients as Experts, Participatory Sense-Making, and Relational Autonomy
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Aunque tradicionalmente se ha considerado a los profesionales de la salud mental como los únicos expertos y responsables de las tomas de decisiones, cada vez hay más conciencia de que el conocimiento experiencial de los expacientes puede contribuir a las prácticas de salud mental. Sostengo que los pacientes actuales también poseen un tipo de experticia, y que incluirlos activamente en el diagnóstico y el tratamiento puede fortalecer su autonomía y permitirles desarrollar hábitos y habilidades importantes. Para dar sentido a estos beneficios y describir cómo los pacientes podrían actuar como correguladores del encuentro terapéutico, recurro a la noción enactivista de “hacer sentido participativamente”.
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Bacha, Karin, Terry Hanley, and Laura Anne Winter, 2020, “ ‘Like a Human Being, I Was an Equal, I Wasn’t Just a Patient’: Service Users’ Perspectives on Their Experiences of Relationships with Staff in Mental Health Services”, Psychology and Psychotherapy: Theory, Research and Practice, vol. 93, no. 2, pp. 367–386.
Badcott, David, 2005, “The Expert Patient: Valid Recognition or False Hope?”, Medicine, Health Care Philosophy, vol. 8, no. 2, pp. 173–178.
Baklien, Børge, and Rob Bongaardt, 2014, “The Quest for Choice and the Need for Relational Care in Mental Health Work”, Medicine, Health Care, and Philosophy, vol. 17, no. 4, pp. 625–632.
Barandiaran, Xabier, 2017, “Autonomy and Enactivism: Towards a Theory of Sensorimotor Autonomous Agency”, Topoi, vol. 36, no. 3, pp. 409–430.
Barclay, Linda, 2000, “Autonomy and the Social Self”, in Catriona Mackenzie and Natalie Stoljar (eds.), Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self, Oxford University Press, New York, pp. 52–71.
Baumann, Holger, 2008, “Reconsidering Relational Autonomy: Personal Autonomy for Socially Embedded and Temporally Extended Selves”, Analyse & Kritik, vol. 30, pp. 445–468.
Borkman, Thomasina, 1976, “Experiential Knowledge: A New Concept for the Analysis of Self-Help Groups”, The Social Service Review, vol. 50, no. 3, pp. 445–456.
Brancazio, Nick, 2020, “Being Perceived and Being ‘Seen’: Interpersonal Affordances, Agency, and Selfhood”, Frontiers in Psychology, vol. 11, 1750.
Castro, Eva Marie, Tine Van Regenmortel, Walter Sermeus, and Kris Vanhaecht, 2019, “Patients’ Experiential Knowledge and Expertise in Health Care: A Hybrid Concept Analysis”, Social Theory & Health, vol. 17, pp. 307–330.
Cherry, Mark J., 2010, “Non-Consensual Treatment is (Nearly Always) Morally Impermissible. Conundrums and Controversies in Mental Health and Illness”, Journal of Law, Medicine, and Ethics, vol. 38, no. 4, pp. 789–798.
Collins, Harris M., and Robert Evans, 2002, “The Third Wave of Science Studies: Studies of Expertise and Experience”, Social Studies of Science, vol. 32, no. 2, pp. 235–296.
Colombetti, Giovanna, and Steve Torrance, 2009, “Emotion and Ethics: An Inter-(En)Active Approach”, Phenomenology and the Cognitive Sciences, vol. 8, no. 4, pp. 505–526.
De Jaegher, Hanne, Anssi Peräkylä, and Melisa Stevanovic, 2016, “The Co-Creation of Meaningful Action: Bridging Enaction and Interactional Sociology”, Philosophical Transactions of the Royal Society B: Biological Sciences, vol. 371, no. 1693, 20150378.
De Jaegher, Hanne, and Ezequiel Di Paolo, 2007, “Participatory Sense-Making: An Enactive Approach to Social Cognition”, Phenomenology and the Cognitive Sciences, vol. 6, no. 4, pp. 485–507.
Di Paolo, Ezequiel, 2009, “Extended Life”, Topoi, vol. 28, pp. 9–21.
Di Paolo, Ezequiel, Elena Clare Cuffari, and Hanne De Jaegher, 2018, Linguistic Bodies: The Continuity Between Life and Language, The MIT Press, Cambridge, MA.
Dings, Roy, 2023, “Experiential Knowledge: From Philosophical Debate to Health Care Practice?”, Journal of Evaluation in Clinical Practice, vol. 29, no. 7, pp. 1119–1126.
Dings, Roy, 2020, “Psychopathology, Phenomenology and Affordances”, Phenomenology and Mind, vol. 18, pp. 56–66.
Dings, Roy, 2018, “Understanding Phenomenological Differences in How Affordances Solicit Action. An Exploration”, Phenomenology and the Cognitive Sciences, vol. 17, no. 4, pp. 681–699.
Dings, Roy, and ¸Serife Tekin, 2023, “A Philosophical Exploration of Experience-Based Expertise in Mental Health Care”, Philosophical Psychology, vol. 36, no. 7, pp. 1415–1434.
Egbert, Matthew D., and Xabier E. Barandiaran, 2014, “Modeling Habits as Self-Sustaining Patterns of Sensorimotor Behavior”, Frontiers in Human Neuroscience, vol. 8, 590.
Flanagan, Owen, 2013, “Identity and Addiction: What Alcoholic Memoirs Teach”, in K.W.M. Fulford et al. (eds), The Oxford Handbook of Philosophy and Psychiatry, Oxford University Press, pp. 865–888.
Fourlas, George N., and Elena Cuffari, 2022, “Enacting Ought: Ethics, Anti-Racism, and Interactional Possibilities”, Topoi, vol. 41, no. 2, pp. 355-371.
Frankfurt, Harry, 1988, The Importance of What We Care about, Cambridge University Press, Cambridge.
Fuchs, Thomas, and Hanne De Jaegher, 2009, “Enactive Intersubjectivity: Participatory Sense-Making and Mutual Incorporation”, Phenomenology and the Cognitive Sciences, vol. 8, no. 4, pp. 465–486.
Gallagher, Shaun, and Helen Payne, 2015, “The Role of Embodiment And Intersubjectivity in Clinical Reasoning”, Body, Movement and Dance in Psychotherapy, vol. 10, no. 1, pp. 68–78.
Gibson, Barbara E., Gareth Terry, Jenny Setchell, Felicity A. Bright, Christine Cummins, and Nicola M. Kayes, 2020, “The Micro-Politics of Caring: Tinkering with Person-Centered Rehabilitation”, Disability and Rehabilitation, vol. 42, no. 11, pp. 1529–1538.
Goffman, Erving, 1964, “The Neglected Situation”, American Anthropologist, vol. 66, no. 6, pp. 133–136.
Houlders, Joseph, Lisa Bortolotti, and Matthew R. Broome, 2021, “Threats to Epistemic Agency in Young People with Unusual Experiences and Beliefs”, Synthese, vol. 199, no. 3/4, pp. 7689–7704.
Lillehammer, Hallvard, 2020, “Autonomy, Consent, and the ‘Nonideal’ Case”, The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine, vol. 45, no. 3, pp. 297–311.
Maiese, Michelle, 2022a, Autonomy, Enactivism, and Mental Disorder, Routledge, New York.
Maiese, Michelle, 2022b, “Mindshaping, Enactivism, and Ideological Oppression”, Topoi, vol. 41, no. 2, pp. 341–354.
Martin, Daniel J., John P. Garske, and M. Katherine Davis, 2000, “Relation of the Therapeutic Alliance with Outcome and Other Variables: A Meta-Analytic Review”, Journal of Consulting and Clinical Psychology, vol. 68, no. 3, pp. 438–450.
Matthews, Steve, 2017, “The Significance of Habit”, Journal of Moral Philosophy, vol. 14, no. 4, pp. 394–415.
McCann, Terence V., and Eileen Clark, 2004, “Advancing Self-Determination with Young Adults Who Have Schizophrenia”, Journal of Psychiatric and Mental Health Nursing, vol. 11, no. 1, pp. 12–20.
McLeod, Carolyn, and Susan Sherwin, 2000, “Relational Autonomy, Self-Trust, and Health Care for Patients Who Are Oppressed”, in Catriona Mackenzie and Natalie Stoljar (eds.), Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and The Social Self, Oxford University Press, New York, pp. 259–279.
Molas, Andrew, 2018, “Empathy, Asymmetrical Reciprocity, and The Ethics of Mental Health Care”, Practical Ethics: Issues and Perspectives, CSSPE/SCEEA, vol. 2, pp. 52–78.
Nelson, Janet R., 2003, “Bioethics and the Marginalization of Mental Illness”, Journal of the Society of Christian Ethics, vol. 23, no. 2, pp. 179–197.
Pelto-Piri, Veikko, Karin Engström, and Ingemar Engström, 2013, “Paternalism, Autonomy and Reciprocity: Ethical Perspectives in Encounters with Patients in Psychiatric in-Patient Care”, BMC Medical Ethics, vol. 14, pp. 1–8.
Pettersen, Tove, and Marit Helene Hem, 2011, “Mature Care and Reciprocity: Two Cases from Acute Psychiatry”, Nursing Ethics, vol. 18, no. 2, pp. 217–231.
Potter, Nancy Nyquist, 2019, “Voice, Silencing, and Listening Well: Socially Located Patients, Oppressive Structures, and an Invitation to Shift The Epistemic Terrain”, in ¸Serife Tekin and Robyn Bluhm (eds.), The Bloomsbury Companion to Philosophy of Psychiatry, Bloomsbury Publishing, London, pp. 305–324.
Rietveld, Erik, and Julian Kiverstein, 2014, “A Rich Landscape of Affordances”, Ecological Psychology, vol. 26, pp. 325–352.
Sandhu, Sima, Eleonora Arcidiacono, Eugenio Aguglia, and Stefan Priebe, 2015, “Reciprocity in Therapeutic Relationships: A Conceptual Review”, International Journal of Mental Health Nursing, vol. 24, no. 6, pp. 460–470.
Striano, Tricia, and Vincent M. Reid, 2006, “Social Cognition in the First Year”, Trends in Cognitive Sciences, vol. 10, no. 10, pp. 471–476.
Tekin, ¸Serife, 2022, “Participatory Interactive Objectivity in Psychiatry”, Philosophy of Science, vol. 89, no. 5, pp. 1166–1175.
Tekin, ¸Serife, 2014, “Self-Insight in the Time of Mood Disorders: After the Diagnosis, beyond the Treatment”, Philosophy, Psychiatry, & Psychology, vol. 21, no. 2, pp. 139–155.
Tekin, ¸Serife, Eddy Nahmias, Thomas W. Polger, and Wenqing Zhao, 2020, “Patients as Experience-Based Experts in Psychiatry: Insights from the Natural Method”, in Eddy Nahmias, Thomas W. Polger, and Wenqing Zhao (eds.), The Natural Method: Essays on Mind, Ethics, and Self in Honor of Owen Flanagan, MIT Press, pp. 79–97.
Toro, Juan, and Kristian Martiny, 2020, “New Perspectives on Person-Centered Care: An Affordance-Based Account”, Medicine, Health Care and Philosophy, vol. 23, pp. 631–644.
Weimer, Steven, 2013, “Evidence-Responsiveness and Autonomy”, Ethical Theory and Moral Practice, vol. 16, no. 3, pp. 621–642.
Westlund, Andrea C., 2009, “Rethinking Relational Autonomy”, Hypatia, vol. 24, no. 4, pp. 26–49.
Wirshing, Donna A., William C. Wirshing, Stephen R. Marder, Robert P. Liberman, and Jim Mintz, 1998, “Informed Consent: Assessment of Comprehension”, American Journal of Psychiatry, vol. 155, no. 11, pp. 1508–1511.
Young, Iris Marion, 1997, “Asymmetrical Reciprocity: On Moral Respect, Wonder, and Enlarged Thought”, Constellations, vol. 3, no. 3, pp. 340–363.
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